Story of Their Lives: Lived Experiences of Parents of Children with Special Needs Amidst the Pandemic
Regie Bangoy
Discipline: Education
Abstract:
The pandemic has caused changes in the educational system of the country that affected everyone,
including children with special needs and their parents. This study aimed to explore the challenges
and coping strategies of the parents of children with special needs in modular distance learning. The
six parents served as the participants of this study and were chosen using the purposive sampling
technique. This qualitative study used a phenomenological approach, and the collected data were
analyzed using thematic analysis. The findings underscored the following themes for the challenges:
strapped for time in teaching at home, out of depth in facilitating learning, difficulty in engrossing
the minds of children, and struggle in making children write. To cope with the mentioned
challenges, parents are collaborating and taking teachers' advice, seizing the perfect mood of their
children, embracing their child's individuality, and keeping their faith against all odds. Considering
the result of the study, the Department of Education may review its educational plan to support
children with special needs and provide additional support to the parents, especially in this new
normal. Further, future researchers may examine the effectiveness of modular distance learning in
meeting the learning needs of children with special needs.
References:
References:
- Agaton, C. B., Cueto L. J. (2021). Learning at home: Parents’ lived experiences on distance learning during COVID-19 pandemic in the Philippines. International Journal of Evaluation and Research in Education 10(3), 2252-8822.DOI: 10.11591/ijere.v10i3.21136
- Akturk, U. & Alyaz, R. (2017). An Evaluation of Anxiety in Parents with Disabled Children and their Coping Strategies.International J o u r n a l of C a r i n g S c i e n c e s 1 0 ( 1 ) 3 4 2 , f ro m www.internationaljournalofcaringscience.org
- Allam, F. C., & Martin, M. M. (2021). Issues and challenges in special education: A qualitative analysis from teacher’s perspective. Southeast Asia Early Childhood Journal, 10(1), 37-49, from https://doi.org/10.37134/saecj.vol10.1.4.2021
- Asa, G.A., Fault, N.K., Ward, P.R., Hawke, K., Crutzen, R, Mwanri, L. (2021). Psychological, sociocultural and economic coping strategies of mothers or female caregivers of children with a disability in Belu district, Indonesia. PLoS ONE 16 (5):e0251274. DOI:10.1371/journal.pone.0251274
- Atsoy, R. & Sevim, C. (2018). Evaluation of Coping Strategies with stress of Parents who Have Mentally Disabled Children in Northern Cyprus. Universal Journal of Education Research 6(6), 1129- 1140.DOI:10.13189/ujer.2018.060601
- Bawalsah, J. A. (2016). Stress and Coping Strategies in Parents of Children with Physical, Mental, and Hearing Disabilities in Jordan. International Journal of Education 8(1), 1948-5476. DOI: 10.5296/ije.v811.8811
- Bergström, M., Hansson, K., Lundblad, A-M., & Cederblad, M. (2006). Sense of coherence: definition and explanation. International Journal of Social W e l f a r e , 1 5 ( 3 ) , 219-229, from https://doi.org/10.111/j.1468-2397.2006.00419. x Bhamani, S., Makhdoom, A.Z.,
- Bharuchi, V., Ali, N, Kaleem, S., & Ahmed D. (2020). Home Learning in Times of COVID: Experiences of Parents. Journal of Education and Educational Development 7(1), 09-26, from http://dx.doi.org/1022555/joeed.v7il.3260
- Busetto, L., Wick, W. & Gumbinger, C. (2020). How to use and assess qualitative research methods. NeurologicalResearch a n d P r a c t i c e . R e t r i e v e d f r o m : https://doi.org/10.1186/s42466-020-00059-z
- Byrne, D. (2022). A worked example of Braun and Clarke’s approach to reflexive thematic analysis. Qual Quant 56, 1391–1412. Retrieved from: https://doi.org/10.1007/s11135-021-01182-y
- Cahapay, M. (2020). How Filipino parents home educate their children with autism during COVID-19 period.International Journal o f D e v e l o p m e n t a l D i s a b i l i t i e s . D O I : 1 0.1 080 /204 7386 9.2 020 .17 805 54
- Cambridge Dictionary. (2021). Parent. Retrieved from: https://dictionary.cambridge.org/us/dictionary/english/parent
- Carter, N., Bryant-Lukosius, D., DiCenso, A., Blythe, J., Neville, A.J. (2014) The Use of Triangulation in Qualitative Research.Oncology Nursing Forum; Pittsburgh. Retrieved from: https://www.proquest.com/docview/1559261620#:~:text=Investigator%20triangulation%20involves%20the%20participation,interest%20(Denzin%2C%201978.
- Chawla, T., Eijdenberg, E.L., & Wood, J. (2021). Chapter 11: Environmental resilience of bottom of the pyramid strategies toward single-use plastics: A recipe from an emerging economy. In T. Chaiechi (Ed.), Economic effects of natural disasters: Theoretical foundations, methods, and tools (pp. 161-178). Academic Press. https://doi.org/10.1016/B978-0-12-817465-4.00011-X
- Collins (2021). Challenge. In Collins dictionary.com. Retrieved July 2 0 , 2 0 2 1 , f r o m http://www.collinsdictionary.com/dictionary/english/challenge Cleland, J. (2017). The qualitative orientation in medical education research. Korean Journal of Medical Education. 29. 61-71. DOI: 10.3946/kjme.2017.53.
- Davis, K. (2021). Teaching special education in the midst of COVID-19: Current conditions of delivering special education services during distance learning. Retrieved from: https://scholarworks.lib.csusb.edu/etd/1166/
- Degamo, S. K, Sano, J. (2021). Challenges of Parents with Children with Special Needs in the New Normal.International Journal of Innovation Science and Research Technology 6 (8), 2456-2165. R e t r i e v e d f r o m : https://ijisrt.com/assests/upload/files/IJISRT21AUG563.pdf
- Delve, H. L, & Limpaecher, A. (2022). What is Phenomenological Research Design? Essential Guide to Coding Qualitative Data. Retrieved from: https://delvetool.com/blog/phenomenology
- Dudovskiy, J. (n.d.). Purposive sampling. Business Research M e t h o d o l o g y . R e t r i e v e d f r o m : https://researchmethodology.net/sampling-in-primary-data-co llection/purposivesampling/
- Estratopoulou, M., Delligianidou, S., Sofologi, M. (2021). Exploring Parents' Experiences on Distance Learning For Students with ASD. European Journal of Special Education Research 7(1), 2501-2428. DOI:10.46827/ejse.v7i1.3394
- Fernando, S. (2020, October 8). Fernando: A bigger challenge for parents and guardians. SunStar PHILIPPINES. Retrieved from: www.sunstar.com.ph/ampArticle/1872819?
- Fekete, O., Kinn, L., Larsen, T. & Langeland, E. (2020). Salutogenesis as a theoretical framework for psychosocial rehabilitation: the case of the Clubhouse model. International Journal of Qualitative Studies on Health and Well-being. DOI: 10.1080/17482631.2020.1748942.
- Fossey E, Harvey C, Mcdermott F, Davidson L. (2002). Understanding and Evaluating Qualitative Research. Australian & New Zealand Journal of Psychiatry. 2002;36(6):717-732. DOI:10.1046/j.1440-1614.2002.01100.x
- Frey, B. (2018). The SAGE encyclopedia of educational research, measurement, and evaluation (Vols. 1-4). Thousand Oaks, CA: SAGE Publications, Inc. doi: 10.4135/9781506326139
- Garbe, A., Ogurlu, U., Logan, N., & Cook, P. (2020). COVID-19 and Remote Learning: Experiences of Parents with Children during the Pandemic. American Journal of Qualitative Research December 2020, 4 (3), 45-64, from https://doi.org/10.29333/ajqr/8471
- Glessner, M.M & Johnson, S.A. (2020). The experiences and perceptions of practicing special education teachers during the C O V I D - 1 9 p a n d e m i c . R e t r i e v e d fro m: https://red.mnstate.edu/ijgll/vol1/iss2/4/
- Griffiths, C.A. (2010). A critical analysis of Antonovsky’s sense of coherence theory in relation to mental health and mental disorder and the effect of a lifelong learning intervention on the sense of mental health service users. PhD thesis, Middlesex University. Retrieved May 8, 2021, from PDF Drive
- Griffiths, C.A., Ryan, P. & Foster, J. H. (2011). Thematic analysis of Antonovsky’s sense of coherence theory. Scandinavian Journal of Psychology 5 2 , 1 6 8 - 1 7 3 . R e t r i e v e d from: https://www.researchgate.net/publication/45183946
- Hernando-Malipot, M.(2020, July 3). DepEd addresses challenges in Special Education under 'new normal'. Manila Bulliten. Retrieved from: https://mb-com-ph.cdn.ampproject.org/v/s/mb.com.ph/2020/0 7/03/deped-addresses-challenges-in-special-education-under-newnormal/?
- Jamaica Association for the Deaf. (2015). Who Are The Children With S p e c i a l N e e d s ? R e t r i e v e d fro m: https://www.jamdeaf.org.jm/articles/who-are-the-children-withspecial-needs
- JVR Africa Group. (2022). Six Simple Steps to Conduct a Thematic A n a l y s i s . R e t r i e v e d r o m : https://jvrafricagroup.co.za/blog/six-simple-steps-to-conduct-a-them atic-analysis
- Khan, M. F. & Alam, M. A. (2016). Coping Trends of Parents Having Children with Developmental Disabilities: A Literature Review. European Journal of Special Education Research 1(3), 2501-2428, from www.oapub.org/edu
- Latzer, I.T., Leitner, Y., & Karnieli-Miller, O. (2020). Core experiences of parents of children with autism during the COVID-19 pandemic look down. Autism 2021, 25(4), 1047-1059. DOI:10.1177/1362361320984317
- Lester, S. (1999). An introduction to phenomenological research. Stan Lester Developments, Tauton. Retrieved from: https://www.researchgate.net/publication/255647619_An_introduction_to_phenomenological_research/link/545a05e30cf2cf516480df6/download
- Llames, J. E. M. (2021). Solo Parents’ Involvement in the Literacy Instruction of their Children in Modular Distance Learning: Challenges and Opportunities. Journal of World Englishes and Educational Practices. 3. 10-18. DOI: 10.32996/ijllt.2021.4.9.2.
- Llego, MA. (n.d.). DepEd Learning Delivery Modalities for School Year 20 20 -2 021 . Teach erPh . Retrieved from: https://www.teacherph.com/deped-learning-delivery-modalitie s/
- Manlangit, P., Paglumotan, A.M, & Sapera, S. C. (2020). Nanay, Handa N a B a K a y o n g Maging Tagapagdaloy? FlipScience. R e t r i e v e d f r o m : https://www.flipscience.ph/news/features-news/tagapagdaloymodular-distance-learning/
- Moon, K., and Blackman, D. (2017). A guide to ontology, epistemology, and philosophical perspectives for interdisciplinary r e s e a r c h e r s . R e t r i e v e d f r o m : https://i2insights.org/2017/05/02/philosophy-forinterdisciplinarity/#:~:text=Subjectivist%20epistemology%20relates%20to%20the,that%20makes%20sense%20to%20them.
- Motulsky, S. L. (2021). Is member checking the gold standard of quality in qualitative research? Qualitative Psychology, 8(3), 389– 406. Retrieved from: https://doi.org/10.1037/qup0000215
- Mulanya, E. (2021). Effects of Handwriting Difficulties on Academic Performance of Learners with Learning Disabilities in Public Primary Schools in Nairobi City Country, Kenya. Retrieved from: https://ir-library.ku.ac.ke/bitsream/handle/123456789/21326/Effects%20of%20handwriting%20difficulties.pdf?
- Neubauer, B. Witkop, C. & Varpio, L. (2019). How phenomenology can help us learn from the experiences of others. Perspectives on Medical Education. DOI: 10.1007/s40037-019-0509-2
- Nieswiadomy, R.M.(2012). Qualitative Research Design. Retrieved from: https://www.studocu.com/ph/document/ama-computer-university/practical-research-2/qualitative-research-design-andquantitative/21886972
- Nightingale, A. (2022). Triangulation. International Encyclopedia of H u m a n G e o g r a p h y . R e t r i e v e d f r o m : https://www.sciencedirect.com/science/article/pii/B9780080449104005526
- Nilsson, K. W., Leppert, J. Simmonsson, B., & Starrin, B. (2010). Sense of coherence and psychological well-being: Improvement with age. Journal of Epidemiology and Community Health, 64(4), 347- 352. DOI: 10.1136/jech.2008.081174
- Odongo, G. (2018). Barriers to Parental/Family Participation in the Education of a Child with Disabilities in Kenya. International Journal of Special Education. Retrieved from: h ttp s://files.eric.ed .g ov/fulltext/EJ1 1840 76 .pd f
- Oluchukwo, N. & Nneka, N.J. (n.d). The Impact of Parental Economic Status on the Primary School Enrollment of Children with Disabilities in Bearing Area Council Abuja A Paper Being Presented. The Educational Psychologist 2(1), 145, from https://journals.ezenwaohaetorc.org/index.php/NCEP/article/downlo ad/1130/1131
- Peel, K.L. (2020). A beginner’s guide to applied educational research using thematic analysis. Practical Assessment, Research & E v a l u a t i o n , 2 5 ( 2 ) , f r o m https://scholarworks.umass.edu/pare/vol25/iss1/2/
- Persson, H., Törnbom, K., Sunnerhagen, K., & Törnbom, M. (2017). The six steps for the thematic analysis according to Braun and Clarke. PLOS ONE. Dataset. Retriev ed from: https://doi.org/10.1371/journal.pone.0181006.t003
- PsychCentral. (2016). Your Sense of Coherence. Retrieved from: https://psychcentral.com/lib/your-sense-of-coherence#1
- SAGE Research Methods Datasets. (2019). Analysing Interview Transcripts of a Phenomenology Study on the Cultural Immersion Experieces of Graduate Counselling Students. Retrieved from: https://methods.sagepub.com/base/download/DatasetStudentGuide/phenomenological-study-cultural-immersion-graduatecounselling-students
- Safe Software. (202). What is Data Validation. Retrieved from: https://www.safe.com/what-is/data-validation/
- Smith, M., Keefer, K., Saklofske, D., Tremblay, P. (2016). Coping Strategies and Psychological Outcomes: The Moderating Effects of Personal Resiliency. The Journal of Psychology2016, 150, 3, 318- 332, from http://dx.doi.org/10.1080/00223980.2015.1036828
- Stanisławski,K. (2019). The Coping Circumplex Model: An Integrative Model of the Structure of Coping With Stress.Frontiers i n P s y c h o l o g y . R e t r i e v e d f r o m : https://www.frontiersin.org/article/10.3389/fpsyg.2019.00694
- Sullivan, G. M., & Sargeant, J. (2011). Qualities of qualitative research: part I. Journal of graduate medical education, 3(4), 4 4 9 – 4 5 2 . R e t r i e v e d f r o m : https://doi.org/10.4300/JGME-D-11-00221.1
- Svinicki, M.D. (1999). New directions in learning and motivation. R e t r i e v e d f r o m : https://kinasevych.ca/2009/02/02/svinicki-1999-new-direction s-inlearning-and-motivation/
- Szymańska and Dobrenko (2017). The ways parents cope with stress in difficult parenting situations: the structural equation modeling approach. PeerJ 5:e3384; DOI 10.7717/peerj.338
- Taderera, C. & Hall, H. (2017). Challenges faced by parents of children with learning disabilities in Opuwo, Nambia.African Journal of Disabilities 6(0), 2226-7220. Retrieved from: https://doi.org/10.4102/ajod.v610.238
- Thwala, S.K., Ntind, K. & Hlanze, B. (2015). Lived Experiences of Parents of Children with Disabilities in Swaziland. Journal of Education and Training Studies 3(4), 2324-8068. Retrieved from: http://dx.doi.org/10.11114/jets.v314.902
- Toquero, C.M.D. (2021). Sana all’inclusive education amid COVID19: Challenges, strategies, and prospects of special e d u c a t i o n t e a c h e r s . R e t r i e v e d fro m: https://hipatiapress.com/hpjournals/index.php/rimcis/article/vi ew/6316
- United Nations. (2020).Policy Brief: Education during COVID-19 a n d b e y o n d . R e t r i e v e d f r o m : https://www.un.org/development/desa/dspd/wp-content/uploads/site s/22/2020/08/sg_policy_brief_covid-19_and_education_august_202 0.pdf
- Umil, A.M. (2020). Students with special needs being left behind in d i s t a n c e l e a r n i n g . R e t r i e v e d fro m: https://www.bulatlat.com/2020/09/17/students-with-special-needs-b eing-left-behind-in-distance-learning/
- VanWynsberghe, R. & Khan, S. (2017). Redefining Case Study. International Journal of Qualitative Methods 2007, 6(2), Article 6. R e t r i e v e d O c t o b e r 2 4 , 2 0 2 1 , f r o m : http://www.ualberta.ca/~iiqm/backissues/6_2/vanwynsberghe.pdf
- Vishnevsky, T & Beanlands, H. (2004). Qualitative research. Nephrology nursing journal: journal of the American Nephrology Nurses' Association. 31. 234-8.
- World Bank. (2020) The World Bank’s Education Response to C o v i d - 1 9 . R e t r i e v e d f r o m : https://thedocs.worldbank.org/en/doc/487971608326640355-009002 2020/original/ExternalWBEDUResponsetoCOVIDDec15FINAL.pdf
- Wu, Q., & Xu, Y. (2020). Parenting stress and risk of child maltreatment during the COVID-19 pandemic: A family stress theory-informed perspective. Developmental Child Welfare 2020, 2(3), 180-196. DOI: 10.1177/251610322096793