HomePsychology and Education: A Multidisciplinary Journalvol. 18 no. 6 (2024)

Exploring Family Caregivers' Attachment, Adjustment, and Acknowledgement in Palliative End-of-Life Care

Jay Errol Baral | Roselle Glenn Abergas | Jiah Kaye Bianca Namoro | Nixon Valroy Padilla | Lindsey Findley Parreño

Discipline: psychology (non-specific)

 

Abstract:

"Caring at the Crossroads" explored the experiences of family caregivers who provided palliative end-of-life care. The study employed a qualitative research design, combining a case study framework with a phenomenological approach. Thirteen participants, selected through purposive and snowball sampling, shared their firsthand experiences. The research method included interviews with the aim of capturing the subjective meanings, emotions, and attachment dynamics, particularly emphasizing the importance of secure attachments in providing stability, trust, and comfort during palliative care. It explored secure, anxious and fearful, and dismissive-avoidant attachment styles, revealing the emotional struggles and conscious choices made by caregivers. The adjustment processes of family caregivers involved a complex interplay of avoidance and approach behaviors. Freeze responses, characterized by hesitation and emotional immobilization, contrasted with flight responses, which involved emotional and physical withdrawal. Approach behaviors, marked by planning and action, demonstrated a proactive and committed approach to caregiving responsibilities. The study emphasized the need to recognize and respect the individual responses of caregivers in the palliative stage. It also acknowledged the various grief experiences that arose after palliative end-of-life care. The research identified four sub-themes: prolonged grief, anticipatory grief, irregular grief, and normal grief. These different patterns of grief highlighted the importance of personalized and empathetic support strategies to address the unique challenges faced by caregivers. The findings of this study provided valuable insights for psychology and counseling, offering understanding and empathy to those who navigated caregiving in the midst of love, pain, and resilience.



References:

  1. Abdel-Malek, R., Farag, D. E., Shohdy, K. S., & Cox, S. (2019). Availability of informal caregivers for palliative care patients with cancer: Is there a difference between higher- and lower-income settings. Indian Journal of Palliative Care, 25(3), 379–382.
  2. Aoun, S., Rumbold, B., Howting, D., Bolleter, A., & Breen, L. J. (2017). Bereavement support for family caregivers: The gap between guidelines and practice in palliative care. PLOS ONE, 12(10), e0184750.
  3. Brown, L., & Jones, K. (2019). The Role of Communication in Grief among Palliative Care Families. Journal of Palliative Care, 34(2), 87-95.
  4. Carlander, I., Sahlberg‐Blom, E., Hellström, I., & Ternestedt, B. (2021). The modified self: family caregivers’ experiences of caring for a dying family member at home. Journal of Clinical Nursing, 20(7–8), 1097–1105.
  5. Duggleby WD, Williams A, Holstlander L. Hope of rural women caregivers of persons with advanced cancer: guilt, self-efficacy, and mental health. Rural Remote Health 2014; 14: 2561.
  6. Hajradinovic, Y., Tishelman, C., Lindqvist, O., & Goliath, I. (2018). Family members’ experiences of the end-of-life care environments in acute care settings – a photo-elicitation study. International Journal of Qualitative Studies on Health and Well-being, 13(1), 1511767.
  7. Harrison, M., Darlison, L., & Gardiner, C. (2022). Understanding the experiences of end-of-life care for patients with mesothelioma from the perspective of bereaved family caregivers in the UK: A qualitative analysis. Journal of Palliative Care, 37(2), 197–203.
  8. Odgers, J., Fitzpatrick, D., Penney, W., & Shee, A. W. (2018). No one said he was dying: Families’ experiences of end-of-life care in an acute setting. Australian Journal of Advanced Nursing, The, 35(3), 21-31.
  9. Van Eechoud, I. J., Piers, R. D., Van Camp, S., Grypdonck, M., Van Den Noortgate, N. J., Deveugele, M., ... Verhaeghe, S. (2017). Perspectives of family members on planning end-of-life care for terminally ill and frail older people. Journal of Pain and Symptom Management, 47(5), 876-886.
  10. World Health Organization. (2020). WHO Definition of Palliative Care. Geneva: WHO. Retrieved from https://www.who.int/cancer/palliative/definition/en/