Digital Lifelines: A Phenomenological study of social support in alter communities of Filipino MSMLHIVs on X (Twitter)
Maurice Jitty M. Villaester
Abstract:
The Philippines faces a rapidly growing HIV epidemic, and Filipino men
who have sex with men living with HIV (MSMLHIVs) encounter stigma
that limits access to information, peer support, and care. Many create
anonymous alter accounts on X (formerly Twitter) to disclose status,
seek advice, and build community. This study examines how alter
spaces function as psychosocial infrastructures for Filipino MSMLHIVs.
Using descriptive phenomenology, the researcher purposively recruited
five adult Filipino MSMLHIVs who actively use alter accounts. Each
completed a one-on-one, semi-structured interview conducted online or
face-to-face. Data were analyzed with Colaizzi's seven-step method.
Alter spaces operated as lifelines that provided (1) emotional validation
and reduced isolation, (2) peer mentorship on treatment, mental health,
and everyday coping, and (3) a cyclical shift from support-seeking to
support-giving that reinforced reciprocity. Participants described greater
adherence motivation, self-acceptance, and future orientation. Risks coexisted: misinformation, emotional-labor fatigue, privacy threats (e.g.,
doxxing, account loss), and the fragility of purely online ties. Alter
communities on X offer stigma-free channels for knowledge exchange,
advocacy, and belonging but require safeguards to mitigate risks.
Platform designers, healthcare providers, and advocates should
integrate verified health content, mental health first-aid resources, and
stronger privacy protections alongside inclusive policies that ensure
continuity of care and counter stigma. This study reframes alter spaces
as vital psychosocial infrastructures for men who have sex with men
living with HIV in stigmatized settings
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