Lived Experiences of Selected Mothers Nurturing Children with Autism Spectrum Disorder: Basis in the Development of Mental Health Workbook towards Well-Being of Mothers of Children with Special Needs
Maria Angelica Amados | Caitlin Cecilio | Alyssa Grace Fusilero | Ivory Franzesca Mostoles | John Miguel Sadiasa | Lara Janea Lorenzo
Discipline: others in psychology
Abstract:
The objective of this study is to provide insight into the experiences of Filipino mothers in Cavite, specifically in behavioral centers of Chrysalides Therapy Center in Bacoor and The Bright Future Behavioral Center in Imus, who take care of children with autism spectrum disorder (ASD). Researchers looked at the personal narratives of ten Filipino mothers from two behavioral centers in Cavite using qualitative phenomenological analysis. To get useful information about their experiences, a fourteen-question semi-structured format was used. The questions were made using the SWOT framework to help them figure out their strengths, weaknesses, opportunities, and threats when it comes to providing care and support for children with ASD and how it affects their daily lives. The data was analyzed through thematic analysis to find themes and patterns. It was found that mothers have strengths like having support from family and society, knowing and caring for their child, and sometimes being religious. However, they are also vulnerable because they deal with a lot of stress and negative emotions, have trouble setting priorities, and have limited access to many health services. There are also times when the family gives relief and helps people bond, yet there are also threats, like disruptive behavior from children, social judgment, and financial challenges. Based on the themes that were found, it is suggested that a workbook be developed with tasks like crossword puzzles, origami, and photo journaling that will keep people interested and help them reach their goals. Its goal is to help mothers live better lives and improve their mental and physical wellness. Overall, this study helps people learn more about the lives of Filipino mothers and offers services that can make their daily experiences and the lives of their children better.
References:
- Abdullah, H., Asraf, R. M., Mohd Ali, M. A., Wahab, N. A., & Baharudin, D. F. (2022). The challenges in raising autistic children: The voices of mothers. International Journal of Evaluation and Research in Education (IJERE), 11(1), 78. https://doi.org/10.11591/ijere.v11i1.21837
- Acharya, S., & Sharma, K. (2021). Lived experiences of mothers raising children with Autism in Chitwan district, Nepal. Hindawi Autism Research and Treatment, 2021(6614490), 1–12. https://doi.org/10.1155/2021/6614490
- Alshaigi, K., Albraheem, R., Alsaleem, K., Zakaria, M., Jobeir, A., & Aldhalaan, H. (2019). Stigmatisation among parents of autism spectrum disorder children in Riyadh, Saudi Arabia. International Journal of Pediatrics and Adolescent Medicine, 7(3). https://doi.org/10.1016/j.ijpam.2019.06.003
- Baird-Bate, K. (2019). Making visible the lived experiences of mothers of children with autism spectrum disorder. https://eprints.qut.edu.au/128644/1/Kirsten_Baird-Bate_Thesis.pdf?fbclid=IwAR09k3jzLIyqxTtX6hCvX2FBCJHsRycUmJ4Jh4jmqImn2T_kNNj2mf0cR7s
- Bangoy, R. M. (2023). Story of their lives: Lived experiences of parents of children with special needs amidst the pandemic. Zenodo, 8.https://doi.org/10.5281/zenodo.7834596
- Baranda, C., & Ebrahim, H. (2019). A comparative study on the parenting styles and level of resiliency between mothers and fathers of children with autism spectrum disorder. Dominican Learning Resource Center
- Berdan, J. C. D., & Distor, J. M. S. (2024). The lived experience of selected filipino female solo parents of children with autism spectrum disorder during a state of health emergency. EPRA International Journal of Multidisciplinary Research (IJMR), 10(3), 1–1. https://eprajournals.com/IJMR/article/12570
- Berthold, J. (2022) Half of moms of kids with autism have high depressive symptoms. Retrieved February 28, 2024, from https://www.ucsf.edu/news/2022/08/423546/half-moms-kids-autism-have-high-depressive-symptoms
- Borro, S., & Ceballo, E. C. (2023). Challenges of parents of children with special needs in the new normal. Zenodo (CERN European Organization for Nuclear Research), 12. https://doi.org/10.5281/zenodo.824071
- Capulong, W., Carandang, L., Castillo, A., Pasion, H., & Policarpio, T. (2023). A phenomenological study on the extent of collaboration on psychosocial support between special education teachers and parents of students with learning disabilities. Dominican Learning Resource Center
- Catubigan, R. (2023). Mothers’ voices on autism spectrum disorder: Leaning towards sustainable inclusive education in Maragusan, Philippines. Discourse and Communication for Sustainable Education. 14. 57-71. 10.2478/dcse-2023-0006. https://www.researchgate.net/publication/370320410_Mothers'_Voices_on_Autism_Spectrum_Disorder_Leaning_Towards_Sustainable_Inclusive_Education_in_Maragusan_Philippines
- Chin, W., Chang, H., & Chao, K. (2023). Exploring coping strategies of parents of children with autism spectrum disorder in Taiwan: A qualitative study. Journal of Nursing Research, 31(3), 10.1097/jnr.0000000000000553. https://doi.org/10.1097/jnr.0000000000000553
- Chua, S., Rahman, F., & Ratnasingam, S. (2023). Problem behaviors and caregiver burden among children with autism spectrum disorder in Kuching, Sarawak. Frontiers Psychiatry, 14. https://doi.org/10.3389/fpsyt.2023.1244164
- Faraji-Khiavi, F., Zahiri, M., Amiri, E., Dindamal, B., & Pirani, N. (2021). The experiences of families raising autistic children: A phenomenological study. Journal of Education and Health Promotion, 10(1), 78. https://doi.org/10.4103/jehp.jehp_837_20
- Lei, X., & Kantor, J. (2021). Social support and family functioning in Chinese families of children with autism spectrum disorder. International Journal of Environmental Research and Public Health, 18(7), 3504. https://doi.org/10.3390/ijerph18073504
- Martinez, A., Co, M., Lau, J., & Brown, J. (2020). Filipino help-seeking for mental health problems and associated barriers and facilitators: a systematic review. Social Psychiatry and Psychiatric Epidemiology, 55(11). https://doi.org/10.1007/s00127-020-01937
- Mansur, M., Masyasari, R., Binti Awad, F., & Asriyanti, A. (2022). Self acceptance in parents of children with autism. KnE Social Sciences, 453–461. https://doi.org/10.18502/kss.v7i8.10764
- Nepomuceno, M. (2022). The lived experiences of thriving family caregivers of persons with autism spectrum disorder. Psychology and Education: A Multidisciplinary Journal, 3(1), 1–1. https://ejournals.ph/article.php?id=20346
- Ng, C., Ng, S. (2022) A qualitative study on the experience of stigma for Chinese parents of children with autism spectrum disorder. Scientific Reports 12, 19550 (2022). https://doi.org/10.1038/s41598-022-23978-0
- Papadopoulos, D. (2021). Mothers’ experiences and challenges raising a child with autism spectrum disorder: A qualitative study. Brain Sciences, 11(3), 309. https://doi.org/10.3390/brainsci11030309
- Roxas, M., Hernandez, A., Francisco, M., Buenaventura, M., Valencia, M., Roxas, M., Francisco, M., Buenaventura, M., Siena, M., & Valencia, R. (2022). Analysis of the lived experiences of Filipino parents of children with ASD. Ioer international multidisciplinary research journal, 4(2), 202–211. https://ioer-imrj.com/wp-content/uploads/2022/06/Analysis-of-the-Lived-Experiences-of-Filipino-Parents-of-Children-with-ASD.pdf
- Sulaimani, M., & Mursi, N. (2022). Experiences of mothers in dealing with stigma related to their children with autism spectrum disorder in the Saudi context. Problems of Education in the 21st Century, 80(6), 851–864. https://doi.org/10.33225/pec/22.80.851
- Tathgur, M., & Kang, H. (2021). Challenges of the caregivers in managing a child with autism spectrum disorder— A qualitative analysis. Indian Journal of Psychological Medicine, 43(5), 416–421. https://doi.org/10.1177/02537176211000769
- Teoli, D., Sanvictores, T., & An, J. (2023). SWOT Analysis. PubMed; StatPearls Publishing. Retrieved February 14, 2024, from https://pubmed.ncbi.nlm.nih.gov/30725987/
- Wadephul, F., Glover, L., & Jomeen, J. (2019). Conceptualising women’s perinatal well-being: A systematic review of theoretical discussions. Midwifery, 81, 102598. https://doi.org/10.1016/j.midw.2019.102598
- Younesi, S., Hosseinpour, A., Azkhosh, M., Safi, M., & Biglarian, A. (2024). Understanding the experiences of parents in raising children with autism spectrum disorder: A qualitative study. Iranian Rehabilitation Journal, 22(1), 35–46. https://doi.org/10.32598/irj.22.1.433.12